Episode 6

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Published on:

20th Dec 2021

Episode 6: Brandon's Experience

Learn about Brandon's experience with his younger sister, diagnosed with Krabbe disease. He discusses how his family dealt with a dire prognosis, talks about the guilt that comes from being a sib, and shares what he would tell his younger self.

Here is a link to many resources for siblings of someone with special needs: https://www.siblingresources.org/resources. Sib20 and SibNet are fantastic Facebook communities with thousands of siblings! 

If you or someone you know is affected by Krabbe Disease, Krabbe Connect is a non-profit working to raise awareness and conduct research about the disorder: https://krabbeconnect.org.

Please contact munkasantra@gmail.com with any questions, concerns, or comments, or to inquire about being on an episode. 

(Transcript coming soon!)

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About the Podcast

The Secret Life of Sibs
A podcast made by sibling of someone with a disability, for other siblings!
The Secret Life of Sibs is made for siblings of people with special needs, by a twin of someone with special needs. Join us for honest conversations with adult siblings from diverse backgrounds. Let's help redefine the expected sibling narrative. Life isn’t all sunshine and rainbows - it’s sunshine streaming through dark clouds and storms and it’s sometimes struggling to see the rainbow. Speaking that communal experience into the light can reach those of us otherwise alone in our circumstance.

About your host

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Romila Santra

Romila is a recent graduate of Johns Hopkins University, where she studied Neuroscience and Medical Humanities. Right now, she's involved in clinical research concerning neurodevelopment disorders like autism, as well as pursing her MA in Science Writing also from JHU. She hopes to eventually be a physician-writer that specializes in treating families affected by these disorders while bringing awareness to the issues surrounding disability in America.